- Genetic Meninges syndrome in a two-year-old boy.
- Establishment of a laboratory for the treatment of the son.
- Xuwi from China who captivated the world.
The world he took in such circumstances made him tremble. He set up a laboratory for the treatment of his son, started research and decided to become a life saver for the child. The incident took place in the Kunming region of China.
Xuwei, from the Kunming area, has a two-year-old son named Haoyong. The child, who has a genetically rare Mankes syndrome, did not develop a brain or nervous system with a copper deficiency in his body. Children with such a disorder find it difficult to live longer than three years. As such, the disease cannot be completely cured. Medications can be used to at least keep the symptoms from getting worse. However they are not available in China.
Corona restrictions have become an impediment to the pony going abroad. Guzui was deeply concerned as he understood how to protect his child. He finally wanted to become a life saver for his child himself. A lab has been set up in the Coming area to put the ideas into practice. Similarly, he did not pursue higher studies and receive degrees. Just attending school and raising a family with a small online business. He learned about the symptoms of the disease, its treatment and medicines online without thinking about his qualifications.
During this time the English language became a hindrance to him and he resorted to translators. After gaining a little grip on them .. his father set up a lab in the gym. Knowing the need for copper histidine in relation to this disease .. a device was devised for its preparation. Xuvi looked all awkward when he wanted to start his own lab.
‘My family and friends opposed my decision. Thought he was joking. That’s impossible, “Xuvi said in an interview with AFP. The first dose was prepared six weeks after the start of the research. Mice first, then launched on himself. The son was put on medication as it was confirmed that there was no risk of everything being normal.
‘What happened to the rats, I did not feel any illness .. So I gave the medicine to my child. I continued to give it as soon as it was confirmed that there was no danger. ‘ He could not be happier when the samples were tested two weeks after starting treatment and the reports came in normally. However, the child does not say so. But if his father’s head is upright, he sheds a pure smile. That’s why Xuvi doesn’t hesitate no matter how hard it is.
However, medical experts say that copper treatment only works for certain genetic diseases and that it should be given as early as three weeks after the baby is born. While the father’s sons are alone in the lab, Xuwi’s wife and their five – year – old daughter live in another part of the city.
Menx syndrome is more common in boys than in girls. The Organization for Rare Diseases estimates that one in every million people is born with the disease. Meanwhile, an international biotech lab called Vector Builder has shown interest in Xuvi research. Began research with him on Menkes Syndrome. Revealed that clinical trials related to it will begin soon. Bruce Lah, the company’s chief scientist, said they were “very inspired”.
On the other hand, Huang Yu, who works in medical genetics at Peking University, said he was ashamed to be a doctor when he heard the case. The medical system needs to be improved for such people. On the other hand .. Xuwi did not give up any chance to save his son. That is why I am now ready to study Molecular Biology.
‘I did not want to make my child wait for death. Even if it fails .. I want to make my child live with hope ‘, he said.
It is only effective against certain genetic disorders and should be given to infants within the first three weeks of life. Parents of other children with Menkez Syndrome are asked to contact Xui and co-operate in the treatment of their children. However, he politely rejects the proposal.